News Online help for sufferers
A man with a genetic condition which he claims was misdiagnosed by doctors has launched an online group to help other sufferers.
Mark Rance (27), of Jackson Street in Goole, suffers from Benign Joint Hypermobility Syndrome, an incurable degenerative condition which affects the body's soft tissues.
Although there is no cure for the condition, the father-of-one believes he can help others by giving them vital information that can help improve their quality of life.
He has now launched a group called Loose Limbs on the social networking site Facebook to raise awareness of the condition and reach people across the world.
Members will be able to talk freely about the condition, contact each other and access links to other websites which can help.
Mr Rance said: "I think Facebook will be a good place for people to talk and learn more about the condition.
"I feel really strongly about helping other people. Although there is no cure, you can limit the damage and delay the situation I have found myself in."
Mr Rance, a former RAF engineer, claims doctors at several hospitals failed to spot his symptoms, and incorrectly diagnosed several other conditions instead.
This prevented him from getting the life-changing physiotherapy sessions he needed for his condition.
By the time his condition was diagnosed, the damage to Mr Rance's body had already been done and he was unable to undergo physiotherapy which, if started early enough, could have delayed the effects of the condition.
* For people who are already on Facebook,and want more information on Benign Joint Hypermobility Syndrome, simply go on the networking site and put Mark's name into a search. Alternatively, go into the group section to make a group search.
People who are not on Facebook can send an email to: looselimbs@live.co.uk
Published on 21st August 2008 in News.
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